PERSONAL STORIES

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Suwanee Mother of Two Finds Relief from Rare Disease in Local Study
Raising twin girls can be a challenging experience for any parent, but Joyce Wilmot of Suwanee lives with the threat of a rare condition more >

In spite of HAE attacks that began in childhood, Mary's HAE was not diagnosed until she was in her 40s.
In spite of HAE attacks that began in childhood, Mary's HAE was not diagnosed until she was in her 40s. more >

A Late Diagnosis
Susan's Experience in a Clinical Research Trial
Susan found that participation in clinical research trials improved her quality of life. more >

Carl finds an Alternative to Pain Medication
Carl had to rely on narcotics for pain control. Then he joined a clinical research trial. more >

Ingrid's Story
Looking back, Ingrid now realizes that her father and uncle died of HAE. Meanwhile, she was treated for insect bites, underwent numerous abdominal surgeries, and was told she was mentally ill. more >

My Family's Experience of Hereditary Angioedema
By Ann
Although HAE affected nearly a dozen relatives from her father's side of the family, her mother thought HAE was all in their mind. It wasn't. It was in their genes. more >

A Long Road to Diagnosis - One man's experience with HAE*
Suspected viral infections, bruising, and sprains were his diagnoses, before Thomas learned he had HAE. more >

Melissa Hopes Study Will Provide Cure
As often as once a week, Melissa is stricken by sudden attacks of hereditary angioedema. Read Melissa's story. more >

A Long Road to Diagnosis - One man's experience with HAE*
I first developed symptoms of hereditary angioedema (HAE) during puberty, though my disease was not diagnosed as such. Instead, I endured years of wrong diagnoses and treatments. more >

My Family's Experience of Hereditary Angioedema
By Ann Price